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Why Recognizing Yourself as a Caregiver Matters, Explained Simply

Recognizing Yourself as a Caregiver: what it is, why it matters, and what published guidance actually asks of you.

Dr Amara Nwosu, PhD, RD Editor-in-chief and registered dietitian 4 min read 2 views
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Many family caregivers do not see themselves as one, and naming the role is what opens the door to support, respite and information.

Key takeaways

  • Family caregivers: tens of millions of Americans provide unpaid care to an adult or child
  • Eldercare Locator: 1-800-677-1116, a free public service that connects you to local aging and caregiver services
  • Most useful single change: Tell your own doctor that you are a caregiver.
  • Commonest mistake: Waiting until you are in crisis to ask for help.
  • See a doctor if any of the signs under "When to speak to a doctor" below apply to you.

The short answer

Providing unpaid support to someone who could not manage without it.

Where it fits

This is part of Carers Health. The figures come first, because the advice only makes sense against them.

The numbers, in one place

Published figures for Recognizing Yourself as a Caregiver
MeasureFigure
Family caregiverstens of millions of Americans provide unpaid care to an adult or child
Eldercare Locator1-800-677-1116, a free public service that connects you to local aging and caregiver services
National Family Caregiver Support Programoffered through local Area Agencies on Aging
Tell your doctorbeing a caregiver changes what support and screening is worth discussing

What that means in practice

Put another way, here is what it asks of you:

  • Tell your own doctor that you are a caregiver
  • Call the Eldercare Locator or your local Area Agency on Aging to ask what support exists near you
  • Ask the person's care team whether you can be listed as a contact and get information
  • Check whether the person qualifies for Medicaid, Medicare or veterans' benefits that include help at home

What gets people into trouble

What to watch out for:

  • Waiting until you are in crisis to ask for help
  • Assuming support is only for people who call themselves caregivers
  • Keeping the role to yourself at work or with your own doctor

Where to go next

When to speak to a doctor

See your doctor if caregiving is affecting your own sleep, mood or health. If you feel unable to go on, or are worried you might harm yourself or the person you care for, call or text 988 (Suicide & Crisis Lifeline) at any hour, and call 911 if anyone is in immediate danger.

Where this comes from

How this page was put together

Every figure, recommendation and warning above is taken from the guidance named in Where this comes from. Nothing on this page is inferred, summarized or generalized beyond what those bodies publish: where they give a number, it is their number, and where they are silent, so are we. Pages are rebuilt whenever the underlying record changes. Sign-off by a named clinician, where it has happened, is shown at the top of the page along with the date.

Medical disclaimer

This article is general information, not medical advice. It cannot account for your own history, medication or circumstances. Always speak to your doctor, pharmacist or another qualified health professional before making changes that affect your treatment, and never delay seeking medical advice because of something you have read here. In an emergency, call 911.

Spotted something wrong? Report an error on this page. We correct on the page and say what changed.

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Dr Amara Nwosu

Editor-in-chief and a registered dietitian of fourteen years. Spent six of them in NHS outpatient clinics, which is where she learned that the advice people actually follow beats the advice that is technically optimal.

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